“65 Roses” is a term which is knows for disease “Cystic Fibrosis”. the term “65 Roses” originated from a story told by a young boy struggling with cystic fibrosis, when he attempted to say Cystic fibrosis, it sounded like “65 roses” to his parent, and then after “65 Roses” become a term to show the hope and affection to the people who are affected with cystic fibrosis.
(NIH) National Health Institute have shared detailed information about cystic fibrosis disease care on their website, this article is a summary which you must know about it.
The story behind “65 Roses” highlights the challenges faced by individual with cystic fibro, particularly to children, in pronouncing the name of their health condition. Today “65 Roses” is a symbol for spreading awareness and efforts to towards mitigating the threat and gain sympathy of Cystic fibro disease.
Today “65 Roses” is a symbol of hope for cure, and it a powerful reminder of raising awareness and advocating its research and providing sympathy and support to Individuals and families affected by cystic f.
Cystic Fibrosis is a genetic disorder that affects our lungs and digestive system of our body. Living with Cystic fibro or 65 Roses Disease is a very tough to treat and adjust your routine with it. Let’s explore the cystic fibro, its cause, symptoms, treatment and challenges which are faced by individuals and their families to live with this disease
Understanding the Cystic Fibrosis:
“Cystic Fibrosis” aka “65 Roses Disease” is a genetic disorder caused by mutation in cystic fibrosis transmembrane conductance regulator (CFTR) genes of our body. These genes are responsible for producing protein, that regulates the flow of salt and water in our body cells, our lungs and digestive system. Mutation in CFTR Disease leads to produce defective protein, which results thick and sticky mucus, which blocks our body airways and obstruct our pancreas and other body parts to do its routine processes.
Symptoms and complications of Cystic Fibrosis:
The symptoms of cystic f is different from person to person but its common signs are as below.
1] Persistent coughing, wheezing and shortness of breath due to mucus build up in airways.
2] Lung infections, such as pneumonia and bronchitis, result in high bacterial infection in thick mucus.
3] Poor growth and weight gain despite healthy appetite, due to malnutrition and damage to digestive system.
4] Pancreatic insufficiency, which leads to difficulty in digesting and absorbing the important nutrition in our body.
5] Salty sweating result in reducing the salt from our body during physical activities and reduce the body nutrition
6] Chronic sinusitis, nasal polyps and other sinus and nasal cavity issues.
7] Increased risk of complications such as diabetes, liver disease, osteoporosis and infertility.
Treatment and Management of Cystic Fibrosis:
As today there is no any confirm cure available for cystic fibrosis, but few treatments combines can provide the support and relief from symptoms to improve the life of individuals.
The treatment strategies for Cystic Fibrosis includes:
Airway Clearance Techniques:
Regular chest physiotherapy and airway clearance technique, such as percussion and postural drainage helps to loose and clear mucus from the lungs, and improves breathing and reduce the risk of lung infection.
Medicines
Medicines prescribed by doctor helps to manage the symptoms and complications in cystic fibro disease. Medications includes bronchodilators to open the airway, antibiotics to treat lung infection, pancreatic enzymes for better digestion and mucolytics to thin the mucus.
Nutrition Support:
A high calorie, nutrition rich and pancreatic promoting enzyme supplements are very important to be given for individuals with cystic fibrosis. Better nutrition helps to improve the health of patients and improve immunity to fight with the disease. Regular monitoring of patient by the expert dietitian is important to improve the health of patient.
Exercise and Physical Activity:
Regular exercise and physical activity are very important to maintain better lung function, promoting heart health and improve overall wellbeing of patient. Routine exercise helps to improve the patient’s immunity and strength which helps to recover early.
Lung Transplantation:
At very critical and rare condition of cystic fibrosis, lung transplantation may be considered by doctors to safeguard the life off patient. This transplant may carry out other health risks and it is the last step after consultation by expert doctor by considering the life threatening condition of patient.
Challenges and Strategies during cystic fibrosis:
For individuals, living with cystic fibrosis has to face many challenges, both physical and emotional and their family. Following strategies may help:
Education and Support:
Learning about cystic fibrosis, its better management and using the best available resources to help the patient and their families to make the correct decision to effectively manage this complex and rare disease.
Social Support:
Connecting with patient and their families having cystic fibrosis with support groups, online forum and community events helps to get more valuable information, support, encouragement and understanding about the disease and make it easy to understand and treat this disease.
Mental Health and Wellbeing:
Prioritizing mental and emotional wellbeing is very important for patients of cystic fibrosis and their families. As this disease is rare and complex disease and it may create stress during treatment and day to day life. Professional counselling helps to address stress, anxiety, depression and other psychological challenges associated with this disease.
Awareness:
Raising awareness of cystic fibrosis disease, advocates the research funding programs and treatment fundraising events helps to create a support in treatment and support to patients of this critical disease.
Food to support health during cystic fibrosis:
As cystic fibrosis is a digestion affecting disease, therefore patients has to follow the particular diet plan prescribed by their doctors, but there are few food items which supports our health during this disease including Dry Fruits, Eggs, Dairy Items including Milk, Yogurt and Cheese, Dark Leafy greens and vegetables such as spinach, kale, lettuce, cabbage, broccoli, Citrus fruits such as orange, lemon, grapefruit, and fruits such as Berries, apple, banana, avocado are good food to be added to get the important vitamins and nutrition to improve the immunity against cystic fibrosis disease.
Last but not least, “Cystic Fibro” aka “65 Rises Disease” is a complex and challenging genetic disorder, that affects our lungs and digestive system. Living with 65 Roses disease of Cystic F is very difficult and filled with uncertainties. It needs more advances in medical treatment, support therapies and research which may offer to improve the support to patients. Awareness and support, research advocacy and compassionate support helps individuals in future where individuals with cystic f conditions to cope up with the disease complexity. Support and medical awareness help patients and their family to follow the positive mind set and live healthier further.
Thanks for visiting Gymbag4u.com